What is lymphoedema and what causes it after cancer treatment?
Lymphoedema is a chronic condition where excess fluid builds up in the tissues, causing swelling—most commonly in the arm, leg, or chest area. After cancer treatment, lymphoedema often develops when lymph nodes are removed or damaged during surgery or radiotherapy. This disrupts normal lymphatic drainage, leading to fluid retention and swelling. It’s common after breast cancer, melanoma, gynaecological, or prostate cancer treatment, but can also occur in other conditions.
What are the early signs of lymphoedema in the arm or leg?
Early signs of lymphoedema include:
- A rise in your L-Dex score (on the SOZO) which doesn’t reduce with regular exercise and massage.
- A feeling of heaviness, tightness, or fullness in the limb
- Visible swelling, especially at the end of the day
- Skin changes such as pitting or indentations from clothing/jewellery
- Aching, tingling, or reduced flexibility in the affected limb
Early detection is key—treatment started promptly and getting an L-Dex reading on our SOZO machine can help detect small changes prevent progression.
Can lymphoedema go away or be cured permanently?
Currently, lymphoedema cannot be cured permanently. However, with early diagnosis and ongoing management, swelling can be significantly reduced and kept under control. At Restore Oncology Care & Lymphoedema Clinic, we use evidence-based treatments to maintain long-term results and improve quality of life.
What is the best treatment for lymphoedema?
The gold standard for lymphoedema management is Complete Decongestive Therapy (CDT), which includes:
- Manual lymphatic drainage (specialised massage)
- Compression therapy (garments, wraps, or pumps)
- Exercise tailored for lymphatic health
- Skin care to reduce infection risk
A personalised treatment plan is essential to achieve the best results. At Restore we incorporate other evidence-based modalities to aid the above. These include:
- MLS laser therapy
- Deep Oscillation Therapy
How can I reduce swelling from lymphoedema at home?
You can support your clinic treatments with:
- Wearing your prescribed compression garments daily
- Exercising according to your Exercise Physiologist’s and Lymphoedema Therapist’s recommendations.
- Elevating the affected limb when possible
- Practising good skin care to prevent infection
- Avoiding prolonged inactivity
- Engaging in self drainage massage daily.
Your therapist can teach you self-massage and home management techniques.
Is exercise safe if I have lymphoedema?
Yes—exercise is not only safe but highly beneficial for people with lymphoedema. Activities such as walking, swimming, Pilates, and resistance training help improve lymphatic flow and reduce swelling. Exercise should be tailored to your needs by a trained therapist. Please consult your Lymphoedema Therapist and Exercise Physiologist for a safe and personalised plan.
Can compression garments help with lymphoedema?
Absolutely. Compression garments provide constant, gentle pressure that helps move lymph fluid out of the affected area and prevents it from pooling. They are essential for long-term lymphoedema management and are available in custom or ready-to-wear options. Compression is highly recommended when managing lymphoedema and is deemed as an essential component in preventing further complications such as cellulitis.
Is massage or manual lymphatic drainage good for lymphoedema?
Yes—manual lymphatic drainage (MLD) is a slow and firm, specialised massage technique that stimulates the lymphatic system, reduces swelling, and relieves discomfort. It should be performed by a trained lymphoedema therapist for best results. Massage should be paired with compression for best results.
What foods should I avoid if I have lymphoedema?
There is no strict “lymphoedema diet,” but it’s best to:
- Follow a balanced diet rich in fruits, vegetables, lean protein, and whole grains which support overall lymphatic health.
- Avoid alcohol and smoking
- Stay hydrated
- See our Dietitian if you have questions about your diet.
What is the difference between lymphoedema and general swelling (oedema)?
Oedema is general swelling caused by fluid retention due to injury, heart failure, or other systemic conditions. Lymphoedema is a specific type of swelling caused by a damaged or overloaded lymphatic system. Lymphoedema requires specialised treatment to prevent it from becoming chronic.
Can I get a needle or blood pressure taken if I have lymphoedema or have had lymph nodes removed?
If you have lymphoedema—or are at risk due to lymph node removal—it is generally recommended to avoid needles, injections, IV lines, or blood pressure cuffs on the affected arm or leg. These procedures are not usually life-threatening, but they can increase the risk of swelling and make you more prone to cellulitis (a skin infection).
This happens because when lymph nodes are removed or damaged, the body’s ability to drain fluid and fight infection in that area is reduced. Any puncture or compression may allow bacteria to enter or further aggravate swelling.
That said, this is ultimately your decision as the patient. Some people choose to strictly avoid procedures on the affected limb, while others may allow it if absolutely necessary—such as in emergencies or when no other site is suitable. If you decide to proceed, let your healthcare provider know about your lymphoedema risk so they can take extra precautions with skin cleaning, needle placement, and post-procedure monitoring.
Where possible, ask for blood draws, injections, and blood pressure checks to be done on the opposite limb or an alternative site to best protect your lymphatic health.
Can I use saunas and spas if I have lymphoedema or have had lymph nodes removed?
Saunas, hot spas, and prolonged heat can cause blood vessels to dilate and increase fluid build-up, which may worsen swelling in people with lymphoedema or those at risk after lymph node removal. Heat can also make the skin more vulnerable, increasing the risk of cellulitis (a bacterial skin infection) if the skin barrier is already compromised.
For these reasons, it is often recommended limiting or avoiding high-heat environments, especially if your swelling is not well controlled. However, the decision is ultimately up to you as the patient. If you choose to use saunas or spas, keep sessions short, avoid extreme temperatures, monitor the affected limb for changes, and ensure your skin is clean and free of cuts or breaks beforehand.
It’s best to discuss your plans with your lymphoedema therapist so you can balance enjoyment with protecting your long-term lymphatic health.
Can I still fly with lymphoedema?
Absolutely—you can still enjoy travelling and flying if you have lymphoedema. While air travel can sometimes cause swelling to increase due to changes in cabin pressure and sitting for long periods, this doesn’t mean you should avoid flying. With the right preparation, most people with lymphoedema fly regularly without any issues.
To reduce the risk of swelling while flying:
Wear your prescribed compression garment for the entire flight
- Move around the cabin or stretch your legs and arms every hour
- Stay hydrated and limit alcohol
- Gently exercise or flex your muscles while seated
- Elevate your limb when possible
Flying is a big part of life for many people with lymphoedema, and taking a few simple steps can make it comfortable and safe. Before a long trip, speak to your lymphoedema therapist to create a personalised in-flight care plan—so you can travel with confidence and focus on enjoying your destination.